On Sunday, April 16, R developed a fever and was fussy throughout the night. So on Monday, April 17, the grandparents took him to Dr. Wai Arm Lam who diagnosed him with a throat infection. He prescribed ammoxicillian and Tylenol for the fever. By Wednesday, April 19, R did not seem to be doing much better so the grandparents took him back to see Dr. Lam. He said that his throat was getting better. By Thursday, CF noted that R seemed to have developed a rash /redness in his arms and legs. He was also not eating very much and starting to get bleeding lips. So we took him to the Kensington Medical Clinic to see Dr. Kee. She thought that R may have been allergic to the ammoxicillian and prescribed azithromician and Advil for the fever at around 39C. She said that R should be back to normal within 24 hours. However, the next day when we went back to see Dr. Kee, there was little to no improvement. Dr. Kee recommended that we go to emergency at Children's Hospital right away. We left right away after picking up a couple of things from home.
When we got to emergency, there were only a few people there so we got in relatively early at around 5pm. The er doctor had suggested that the problem could be allergic reaction to the antibiotics, nasal virus, or Kawasaki Disease. After several tests (blood tests, IV insertion, nasal swab, etc.) and a few hours later, the doctor determined that it was most likely Kawasaki Disease and advised that R should be admitted into a room right away. We got into room 3M9 at around 11pm. R got a dose of Tylenol at 11:30 PM after his temperature was at 39.6. His treatment of the IVIG (blood transfusion) began at around 1am and went on until about 7am (two bags).
Since the transfusion, R seemed to be getting better. The rash seems gone, the bleeding lips seems to look better, and by the afternoon, the fever seems to have dissipated. At around noon on Saturday, the cardiologist wanted to do an ultrasound of R's heart. We tried it once without any sedative and R was too fussy to get good pictures. So the cardiologist tried again but sedated R. This time R was asleep 5 minutes after the sedative was given so the cardiologist got some good pictures.
R has been quite groggy since the sedative but even so, he managed to drink some fluids and drank the whole bowl of mushroom soup. He even ate the aspirin pill that we hid in a spoonful of soup.
CFs 3E and Tracy came by for a quick visit and brought CF and I some sandwiches.
It is almost 9pm now and R has still been groggy and has not eaten since 1pm. But I think he needs the sleep to help him recover.
CF and I were reading about the long term effects of KD and are getting a little concerned... Some examples are :
Eczema
Irritability
Dry Skin peeling from hands and feet
Purple hands
Difference in behaviour (crankiness) - this would probably be my biggest concern since R has been such a pleasant happy boy
Heart problems
Migraines
I hope R gets through this quickly without any lasting effects.
Update 1: Saturday, April 22, 11pm. Yay! R finally ate some solid food and drank more fluids. He had a decent sized meal for him. CF and I are happy.
Update 2: Sunday, April 23, 2014, 7pm. It has now been 36 hours since the IVIG treatment was finished (7am on Saturday). We are now waiting anxiously to be discharged from the hospital. R has been fussy and irritable all day. He just got the IV taken out and he is napping now after being breastfeed. We are waiting for the doctors to give us the Ok to go, but they are just going through a shift change.
